Nicole Boice

Founder/CEO at Global Genes

Nicole Boice's Professional Contact Details

Email (Verified)

****@globalgenes.org

Get Email Address

(949) 248-7273

Location

California, US

Company

Global Genes

Person Seniority

founder

Person Functions

entrepreneurship

Nicole Boice's Current Company Details

Global Genes

Aliso Viejo, California, US • 30 Employees

non-profits & non-profit services

Global Genes is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, caregivers, advocates and clinical partners. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope â€“ the Blue Denim Genes Ribbonâ„¢. What began as a grassroots movement in 2009 with a few rare disease parent advocates and foundations has grown to over 500 global organizations. Global Genes'â€‹ mission is to eliminate the challenges of rare disease through public and physician education, building community through social media and supporting research initiatives to find treatments and cures for rare diseases. Rare diseases affect 1 in 10 Americans, 30 million people in the United States, and 350 million people globally. Over 7,000 distinct rare diseases exist and approximately 80 percent are caused by faulty genes. The National Institutes of Health estimates that 50% of people affected by rare diseases are children, making rare diseases one of the most deadly and debilitating for children worldwide. It is estimated that 95% of all rare diseases do not have a single FDA approved drug treatment, and there are currently less than 400 treatments approved by the FDA for the nearly 7000 rare diseases which have been identified.

Founded Year

2009

Organization Website

globalgenes.org

Organization Languages

English

Alexa Ranking

381576

Current Technologies

salesforce

gmail

google apps