Isabel Jordan
Chair at Rare Disease Foundation
Isabel Jordan's Professional Contact Details
Email (Verified)
****
HQ
(866) 348-6677
Location
Vancouver, British Columbia, Canada
Company
Rare Disease Foundation
Person Seniority
entry
Isabel Jordan's Current Company Details
One in 12 people will be affected by a rare disease in their lifetime and children bear the brunt of this burden. The Rare Disease Foundation bridges the gap between research and care for children wi...
One in 12 people will be affected by a rare disease in their lifetime and children bear the brunt of this burden. The Rare Disease Foundation bridges the gap between research and care for children with rare diseases, funding inspired patient-focused research projects poised to directly impact their care and quality of life. Our vision is to transform the world of rare disease care. The Rare Disease Foundation empowers parents to solve problems that are commonly seen in the rare diseases by linking parents together locally and on the web with our Parent 2 Parent Resource Networks. We are always looking to expand so please contact us if you wish to start a group in your area.
Founded Year
2009
Organization Website
rarediseasefoundation.org
Organization Languages
English
Current Technologies
vimeo
youtube
microsoft-iis
asp net
new relic
google analytics
taboola
organizing crossdisease resource networks
translational care
research
Isabel Jordan's Work History and Education
Rare Disease Foundation
Chair
2010 - Present
Colleagues at Rare Disease Foundation
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